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April of 2021 was a historical month

The official recognition of the community-based landscape on a global stage at the World EPA Congress, established the ecosystem's first check and balance. 

Published on April 30, 2020

April of 2021 was a historical month for community-based activism. For the first time, community-based activists announced the much anticipated official separation from the patient advocacy landscape. The establishment of the community-based landscape is to serve as the ecosystem's check and balance.

 

 

 

 

The World Evidence, Pricing and Access (EPA) Congress is the event not to miss in 2021. Not only can advocacy professionals apply for complimentary VIP guest access, but this event will be hosting the very first Community-Based Collaboration Zone, a two hour event curated by the Rare Advocacy Movement.

As if that wasn't enough excitement, the unveiling of RAM's exclusive estate, developed by the Adults Living Rare Initiative, will be introduced to industry-based, academic-based and advocacy-based stakeholders (because community-based stakeholders are already in the know) as the much anticipated grand finale of the World EPA Congress, scheduled to air on April 15, 2021, 13:00 Central European Time.

Here is a break down of the must attend sessions that are happening at the World EPA Congress:

  • On Wednesday April 14, 2021, during the patient advocacy track at 13:40 Central European Time, Dawn Ireland will be chairing a panel discussion that will explore what can be done to improve collaborations between patients and biopharmaceutical industry members.

 

  • On Thursday April 15, 2021, the first Community-Based Stakeholder Collaboration Zone will launch at 13:00 Central European Time and will run for 2 hours!

Stay tuned for the finalized full two hour agenda, scheduled to publish with RAM's March, 2021 Living RARE News release.

1st Cbs collaboration zone

DON'T MISS OUT. YOUR CHANCE TO RSVP CLOSES ON APRIL 12, 2021 at 5:00pm EST

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