There are several events dedicated to gathering key opinion leaders and various stakeholders from the rare disease community to discuss patient-centricity, advocacy, and a variety of topics that involve placing the patient's needs first within the drug development continuum. Advocacy leaders should not have to spend money to attend events that target members of industry and discuss patient advocacy and/or market patient-centric topics as a key part of the agenda. 


While some event organizers have began to show that they value the patient advocacy voice by offering travel stipends to advocates and including advocates as speakers, more event organizers need to include patient advocacy travel stipends as a budget item.  

If your event offers travel stipends to patient advocates, please feel free to Contact Us so that we may include your event on our calendar. 

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The Rare Advocacy Movement (RAM) is a group of patient advocacy professionals dedicated to the overall advancement of the rare disease patient advocacy professional ecosystem and landscape. Membership and participation in RAM is subject to the observance of the established Code of Conduct for Membership ("Code of Conduct") and the acceptance of the established and adopted RAM Process Document. All members and affiliates of RAM vow to abide by the established Code of Conduct. Any RAM member or affiliate who may violate the Code of Conduct in parts and/or in its entirety will be subject to immediate removal from the RAM membership and/or affiliation.