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EventS

There are several events dedicated to gathering key opinion leaders and various stakeholders from the rare disease community to discuss patient-centricity, advocacy, and a variety of topics that involve placing the patient's needs first within the drug development continuum. Advocacy leaders should not have to spend money to attend events that target members of industry and discuss patient advocacy and/or market patient-centric topics as a key part of the agenda. 

 

While some event organizers have began to show that they value the patient advocacy voice by offering travel stipends to advocates and including advocates as speakers, more event organizers need to include patient advocacy travel stipends as a budget item.  

If your event offers travel stipends to patient advocates, please feel free to Contact Us so that we pay include your event on our calendar.