Cheri oban

Cheri is inspired by the rare disease community and passionate about helping others. She is on a journey to bridge her personal and professional experiences to advance patients’ stories, clinical insights, access, and treatment options for rare diseases.

Her first-hand experience with rare diseases began when she noticed her child had unusual symptoms. This led to several years of seeing many specialists across multiple organizations to determine the best treatment path. Together with her son, she has been advocating for rare disease patients.

 

For over 10 years, Cheri has worked in the biotechnology industry. She previously held multiple leadership roles at Genentech. Most recently, she consulted at a mid-size rare disease company to support their first gene therapy launch. She is currently the New Indications Lead at UCB.

 

Cheri’s caregiver insight, scientific background, and extensive biotechnology experience, enable her to provide support for the rare disease community in areas such as understanding the clinical and regulatory landscape, launching new products, and removing barriers to ensure access to innovative therapies.

Contact Cheri

Areas of Advocacy Expertise:

  • Nonprofit Organization

  • Board Management

  • Story Telling

  • Advocacy Partnerships outside of disease-specific community

  • Insurance/Reimbursement

  • Legislation/Lobbying on Capitol Hill

  • LinkedIn - White Circle

The Rare Advocacy Movement (RAM) is a novel rare disease community-based advocacy network designed to address the issues that affect the real world people of the rare disease community.  RAM is the only community-based Center of Insight and Collaboration Zone offering rare disease stakeholders authentic, comprehensive real world insights, from the source. Each RAM member has made a public vow to always act in the best interest of the rare disease community by abiding by the Code of Conduct for Membership. Those who violate the Code of Conduct for Membership risk removal from the RAM membership and access to the global network via majority vote.