There are several ways to contribute to the Rare Advocacy Movement (RAM), the only rare disease community-focused leadership network. RAM was founded on the premise of developing authentic, mutually beneficial collaborations between morally-sound, community-focused rare disease advocates and rare disease focused industry stakeholders. The RAM network also has a unique mentorship component where resources, lessons, opportunities and skillsets are shared amongst the membership for the betterment of an overall collaborative goal, dubbed "RAM Collaborations." 


RAM Collaborations are research and/or program development initiatives developed in collaboration with at least one member of RAM and at least one rare disease focused stakeholder. Each RAM Collaboration must address an ongoing issue faced by the collaborative rare disease community. 

If you are interested in discussing the potential of developing a RAM Collaboration, you are encouraged to contact us.

If you would like for the RAM membership to consider listing and/or sharing a resource (i.e. publication, networking event, funding opportunity, etc.) that may be of interest to the rare disease community, please email us the resource for review and consideration.​

Another way to contribute would be to subscribe to our mailing list (if you are already subscribed, make sure to check that we aren't landing in your spam folder) and to follow us on social media. You can subscribe and find us on social media by going to the footer of this page.

"Nothing about us, without us."

- the diverse people of the rare disease community

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The Rare Advocacy Movement (RAM) is a novel rare disease community-based advocacy network designed to address the issues that affect the real world people of the rare disease community.  RAM is the only community-based Center of Insight and Collaboration Zone offering rare disease stakeholders authentic, comprehensive real world insights, from the source. Each RAM member has made a public vow to always act in the best interest of the rare disease community by abiding by the Code of Conduct for Membership. Those who violate the Code of Conduct for Membership risk removal from the RAM membership and access to the global network via majority vote.