There are several ways to contribute to the Rare Advocacy Movement (RAM), the only rare disease community-focused leadership network. RAM was founded on the premise of developing authentic, mutually beneficial collaborations between morally-sound, community-focused rare disease advocates and rare disease focused industry stakeholders. The RAM network also has a unique mentorship component where resources, lessons, opportunities and skillsets are shared amongst the membership for the betterment of an overall collaborative goal, dubbed "RAM Collaborations." 


RAM Collaborations are research and/or program development initiatives developed in collaboration between at least one member of RAM and at least one rare disease focused stakeholder that work together to address an ongoing issue faced by the collaborative rare disease community. 

If you are interested in discussing the potential of developing a RAM Collaboration, you are encouraged to contact us.

If you would like for the RAM membership to consider listing and/or sharing a resource (i.e. publication, networking event, funding opportunity, etc.) that may be of interest to the rare disease community, please email us the resource for review and consideration.​

Another way to contribute would be to subscribe to our mailing list and to follow us on social media. You can subscribe and find us on social media by going to the footer of this page.

"Nothing about us, without us."

- the diverse people of the rare disease community

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The Rare Advocacy Movement (RAM) is a rare disease community-based advocacy initiative focused on addressing the issues that affect the real world people of the rare disease community.  RAM serves as a community-based Center of Insight and Collaboration for rare disease focused stakeholders seeking authentic collaborations and comprehensive community insights. Each current RAM member has made a public vow to always act in the best interests of the rare disease community through the adopted Code of Conduct for Membership or risk being removed from the RAM membership and network.