Gay has been active in the Rare Disease community for over two decades and continues her efforts to build and support patient and family advocacy. Together with her daughter Lilly, they co-authored a children’s Rare Disease book, We Are All Rare, providing a Rare Disease learning tool for elementary school aged children. She and her husband, Steve, founded ADCY5.org to support patients and families challenged with ADCY5-related Dyskinesia. Prior success at Glaxo Inc., provided her foundation of science that she now applies when sharing the burden of disease, to bring awareness through advocacy and public speaking. Gay successfully advocates in a variety of environments including, but not limited to, educational classrooms, private, state, and federal insurance, as well as collaborating in the Rare Disease space to gain access to clinical trials and medical therapies. She is currently the Director of Patient Engagement at Neurogene.