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The Rare Advocacy Movement (RAM) is a group of patient advocacy professionals dedicated to the overall advancement of the rare disease patient advocacy professional ecosystem and landscape. Membership and participation in RAM is subject to the observance of the established Code of Conduct for Membership ("Code of Conduct") and the acceptance of the established and adopted RAM Process Document. All members and affiliates of RAM vow to abide by the established Code of Conduct. Any RAM member or affiliate who may violate the Code of Conduct in parts and/or in its entirety will be subject to immediate removal from the RAM membership and/or affiliation.

Leslie RogerS

Les is passionate about informing and supporting families affected by CFC Syndrome, Infantile Spasms/West Syndrome, and the greater developmentally disabled community. Les holds a B.A. in Economics and a Master of Public Administration Degree from California State University, Stanislaus. Les is also a credentialed teacher in both California and Oregon.

 

Les lives in Roseburg, Oregon with his wife, Jennifer, and daughters Aurora and Gloria. Gloria was born in 2013 and was diagnosed at eight months old with Cardio Facio Cutaneous Syndrome. Les is an advocate for the developmentally disabled community, and his experience growing up with a disabled adopted sister helped prepare him well for life as an advocate at the regional, state, and national level in Oregon. Les is a Human Development Instructor and Director of the Student Support Services TRiO program at Umpqua Community College. Les has also worked as a high school teacher, and a football coach at an early college high school in California.