Leslie RogerS

Les is passionate about informing and supporting families affected by CFC Syndrome, Infantile Spasms/West Syndrome, and the greater developmentally disabled community. Les holds a B.A. in Economics and a Master of Public Administration Degree from California State University, Stanislaus. Les is also a credentialed teacher in both California and Oregon.


Les lives in Roseburg, Oregon with his wife, Jennifer, and daughters Aurora and Gloria. Gloria was born in 2013 and was diagnosed at eight months old with Cardio Facio Cutaneous Syndrome. Les is an advocate for the developmentally disabled community, and his experience growing up with a disabled adopted sister helped prepare him well for life as an advocate at the regional, state, and national level in Oregon. Les is a Human Development Instructor and Director of the Student Support Services TRiO program at Umpqua Community College. Les has also worked as a high school teacher, and a football coach at an early college high school in California.

  • LinkedIn - White Circle

The Rare Advocacy Movement (RAM) is a patient advocacy initiative focused on documenting the evolving complex ecosystem and unique dynamics of the rare disease patient advocacy landscape. RAM serves as community-based professional network and Center of Insight (COI) for rare disease focused stakeholders. The RAM membership is comprised of a network of patient advocacy community expert professionals that have vowed to abide by the established Code of Conduct for Membership.