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RAM HAS ENTERED INTO A FISCAL SPONSORSHIP AGREEMENT WITH THE ABILITYLIST, A 501(C)3 NONPROFIT
AbilityList.org is a place for you to share your resources and discover new ones. Our goal is to connect the 56 million Americans with disabilities with resources that work for you, in your hometown and across the country.

Luke Rosen

Luke Rosen is the founder of KIF1A.ORG, a nonprofit organization working to discover treatment for KIF1A, a rare genetic disease. Luke and his wife, Sally,  started the foundation in 2016 when their daughter was diagnosed with KIF1A. KIF1A.ORG is a patient-led foundation with a growing registry and active core of patients and caregivers.

 

Collaborating closely with the scientific community, the foundation plays a central role in research and innovation leading to treatment of rare, neurological diseases. Luke also leads the Patient Engagement initiative at Ovid Therapeutics, a rare disease biotech in New York City.