Know Rare

Know Rare is an innovative technology platform built on a commitment to the real world patients of the rare disease community. Developed to help researchers engaged in the clinical process of therapeutic development for rare disease, the Know Rare team is the first digital health company, focused on rare diseases, to enroll in a community-developed diversity, equity and inclusion (DEI) unLearning program.

Successfully enrolling the minimum of five required participants, Know Rare's participation in the "Our Lives Matter" DEI unLearning program is a testament to their dedication to understanding the real world rare disease experience and establishing themselves as authentic allies to the community-based rare disease ecosystem.

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The Rare Advocacy Movement (RAM) is a novel rare disease community-based advocacy network designed to address the issues that affect the real world people of the rare disease community.  RAM is the only community-based Center of Insight and Collaboration Zone offering rare disease stakeholders authentic, comprehensive real world insights, from the source. Each RAM member has made a public vow to always act in the best interest of the rare disease community by abiding by the Code of Conduct for Membership. Those who violate the Code of Conduct for Membership risk removal from the RAM membership and access to the global network via majority vote.