• Adults Living Rare

The first Community-based stakeholder collaboration zone

The first Community-Based Stakeholder Collaboration Zone will be taking place at the WORLD EPA CONGRESS!



The World Evidence, Pricing and Access (EPA) Congress is the event not to miss in 2021. Not only can advocacy professionals apply for complimentary VIP guest access, but this event will be hosting the very first Community-Based Collaboration Zone, a two hour event curated by the Rare Advocacy Movement.

As if that wasn't enough excitement, the unveiling of RAM's exclusive estate, developed by the Adults Living Rare Initiative, will be introduced to industry-based, academic-based and advocacy-based stakeholders (because community-based stakeholders are already in the know) as the much anticipated grand finale of the World EPA Congress, scheduled to air on April 15, 2021, 13:00 Central European Time.

​​And it get's even better! RAM will be hosting the first Living Rare Afterparty on April 15, 2021!

The COVID-19 pandemic has deprived the industry of the best part of going to a conference ... the afterparties.

We are right there with you. We also miss all the free SWAG! All the free drinks! All the free tote bags!

So, we had to do it. We had to bring the afterparty back! So if you are a community-based or community-focused stakeholder in the rare disease ecosystem then you are cordially invited to the very first Living Rare Afterparty.

To answer the first question that is probably on your mind ... yes, this party is virtual. But don't let that discourage you! We are here. We are RARE...and quite honestly, we ARE the party. DON'T MISS OUT. YOUR CHANCE TO RSVP CLOSES ON APRIL 12, 2021 at 5:00pm EST.