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"Our Lives Matter"

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The Rare Advocacy Movement (RAM) is a novel rare disease community-based advocacy network designed to address the issues that affect the real world people of the rare disease community. RAM is the only community-based network dedicated to offering rare disease stakeholders authentic, comprehensive real world insights, from the source. Each RAM member has made a public vow to always act in the best interest of the people of the rare disease community by abiding by the Code of Conduct for Membership. Those who violate the Code of Conduct for Membership risk automatic resignation from the RAM membership via majority vote.