• LinkedIn - White Circle

RAM HAS ENTERED INTO A FISCAL SPONSORSHIP AGREEMENT WITH THE ABILITYLIST, A 501(C)3 NONPROFIT
AbilityList.org is a place for you to share your resources and discover new ones. Our goal is to connect the 56 million Americans with disabilities with resources that work for you, in your hometown and across the country.

Rachelle dixon

Rachelle Dixon, co-founder of HSAN1E Society, is a wife, mother of two, and brings a unique caregiver perspective to the rare disease community, as she held the vital role of caregiver for both her sister and brother. While Rachelle grew up knowing there was a genetic rare disease that ran in her family, it wasn’t until 2015 when she could put a name to it. Rachelle didn't waste any time, co-founding the HSAN1E Society and simultaneously becoming a rareLeader within the rare disease advocacy space, effectively coining the hashtag "#theOther50Percent".  Rachelle's passion for patient advocacy makes her an essential member of the Rare Advocacy Movement as she holds the title of Membership Liaison.