Rachelle dixon

Rachelle Dixon, co-founder of HSAN1E Society, is a wife, mother of two, and brings a unique caregiver perspective to the rare disease community, as she held the vital role of caregiver for both her sister and brother. While Rachelle grew up knowing there was a genetic rare disease that ran in her family, it wasn’t until 2015 when she could put a name to it. Rachelle didn't waste any time, co-founding the HSAN1E Society and simultaneously becoming a rareLeader within the rare disease advocacy space, effectively coining the hashtag "#theOther50Percent".  Rachelle's passion for patient advocacy makes her an essential member of the Rare Advocacy Movement as she holds the title of Membership Liaison.

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The Rare Advocacy Movement (RAM) is a rare disease focused community advocacy initiative focused on addressing the issues that affect the real world people of the rare disease community.  RAM serves as a community-based professional network and Center of Insight (COI) for rare disease focused stakeholders seeking authentic connections and unadulterated community insights. The RAM membership is comprised of a network of patient advocacy community expert professionals that have vowed to abide by the established Code of Conduct for Membership. As a result, every current RAM member has made a public vow to always act in the best interest of the rare disease community.