Rachelle dixon

Rachelle Dixon, co-founder of HSAN1E Society, is a wife, mother of two, and brings a unique caregiver perspective to the rare disease community, as she held the vital role of caregiver for both her sister and brother. While Rachelle grew up knowing there was a genetic rare disease that ran in her family, it wasn’t until 2015 when she could put a name to it. Rachelle didn't waste any time, co-founding the HSAN1E Society and simultaneously becoming a rareLeader within the rare disease advocacy space, effectively coining the hashtag "#theOther50Percent".  Rachelle's passion for patient advocacy makes her an essential member of the Rare Advocacy Movement as she holds the title of Membership Liaison.

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The Rare Advocacy Movement (RAM) is a group of patient advocacy professionals dedicated to the overall advancement of the rare disease patient advocacy professional ecosystem and landscape. Membership and participation in RAM is subject to the observance of the established Code of Conduct for Membership ("Code of Conduct") and the acceptance of the established and adopted RAM Process Document. All members and affiliates of RAM vow to abide by the established Code of Conduct. Any RAM member or affiliate who may violate the Code of Conduct in parts and/or in its entirety will be subject to immediate removal from the RAM membership and/or affiliation.