Rachelle dixon

Rachelle Dixon, co-founder of HSAN1E Society, is a wife, mother of two, and brings a unique caregiver perspective to the rare disease community, as she held the vital role of caregiver for both her sister and brother. While Rachelle grew up knowing there was a genetic rare disease that ran in her family, it wasn’t until 2015 when she could put a name to it. Rachelle didn't waste any time, co-founding the HSAN1E Society and simultaneously becoming a rareLeader within the rare disease advocacy space, effectively coining the hashtag "#theOther50Percent".  Rachelle's passion for patient advocacy makes her an essential member of the Rare Advocacy Movement as she holds the title of Membership Liaison.

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The Rare Advocacy Movement (RAM) is a novel rare disease community-based advocacy network designed to address the issues that affect the real world people of the rare disease community.  RAM is the only community-based Center of Insight and Collaboration Zone offering rare disease stakeholders authentic, comprehensive real world insights, from the source. Each RAM member has made a public vow to always act in the best interest of the rare disease community by abiding by the Code of Conduct for Membership. Those who violate the Code of Conduct for Membership risk removal from the RAM membership and access to the global network via majority vote.