Understanding the Evolving Perspectives of Patient Advocacy Groups and Their Role in Drug Development

#RareDiseases

COVANCE and the RARE ADVOCACY MOVEMENT (RAM) have partnered to gain a better understanding of the evolving perspectives of patient advocacy groups and PAG's roles in the drug development continuum
 
In order to generate data to inform public discussions and to find ways to better embed the critical pulse of the patient throughout the continuum, we are asking all Patient Advocacy Leaders to complete the following survey.  The survey should take approximately 10 minutes to complete.
Preliminary Results
presented at the World Orphan Drug Congress (WODC) in Washington D.C.,
April 2019
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Covance Inc., the drug development business of LabCorp®, is the world’s most comprehensive drug development company, dedicated to advancing healthcare and delivering Solutions Made Real®. 

​ All responses are confidential and will be only reported in aggregate.  In addition, upon conclusion of the data collection process, Covance and RAM will present results back to marketplace. If you have any questions or problems with the survey please email: patients@covance.com

Thank you for taking a few minutes to share your valuable insights and experiences.

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The Rare Advocacy Movement (RAM) is a patient advocacy initiative focused on documenting the evolving complex ecosystem and unique dynamics of the rare disease patient advocacy landscape. RAM serves as community-based professional network and Center of Insight (COI) for rare disease focused stakeholders. The RAM membership is comprised of a network of patient advocacy community expert professionals that have vowed to abide by the established Code of Conduct for Membership.