COVANCE and the RARE ADVOCACY MOVEMENT (RAM) have partnered to gain a better understanding of the evolving perspectives of patient advocacy groups and PAG's roles in the drug development continuum
In order to generate data to inform public discussions and to find ways to better embed the critical pulse of the patient throughout the continuum, we are asking all Patient Advocacy Leaders to complete the following survey.  The survey should take approximately 10 minutes to complete.
Preliminary Results
presented at the World Orphan Drug Congress (WODC) in Washington D.C.,
April 2019
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Covance Inc., the drug development business of LabCorp®, is the world’s most comprehensive drug development company, dedicated to advancing healthcare and delivering Solutions Made Real®. 

​ All responses are confidential and will be only reported in aggregate.  In addition, upon conclusion of the data collection process, Covance and RAM will present results back to marketplace. If you have any questions or problems with the survey please email:

Thank you for taking a few minutes to share your valuable insights and experiences.

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The Rare Advocacy Movement (RAM) is a group of patient advocacy professionals dedicated to the overall advancement of the rare disease patient advocacy professional ecosystem and landscape. Membership and participation in RAM is subject to the observance of the established Code of Conduct for Membership ("Code of Conduct") and the acceptance of the established and adopted RAM Process Document. All members and affiliates of RAM vow to abide by the established Code of Conduct. Any RAM member or affiliate who may violate the Code of Conduct in parts and/or in its entirety will be subject to immediate removal from the RAM membership and/or affiliation.