The Rare Advocacy Movement, a rare disease community leadership network, was founded on the premise of developing mutually beneficial collaborations between rare disease community leaders and other rare disease stakeholders, with the goal of developing insightful publications dubbed "RAM Collaborations". RAM Collaborations like "Adults Living Rare" and "Missing Endpoints" are research collaboration projects between select members of RAM and a rare disease focused stakeholder organization/company that cover areas of interest to the rare disease community and its' dedicated leaderships and influencers.
If you are interested in discussing the potential of developing a RAM Collaboration, please feel free to submit a proposal.
If you would like for the RAM membership to consider listing a resource (i.e. publication, networking event, funding opportunity, etc.) to be of use to the rare disease patient advocacy leadership community, please complete the following form for consideration.