Resource listing request
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RAM reserves the right to deny any resource listing request.

The Rare Advocacy Movement, a rare disease community leadership network, was founded on the premise of developing mutually beneficial collaborations between rare disease community leaders and other rare disease stakeholders, with the goal of developing insightful publications dubbed "RAM Collaborations". RAM Collaborations like "Adults Living Rare" and "Missing Endpoints" are research collaboration projects between select members of RAM and a rare disease focused stakeholder organization/company that cover areas of interest to the rare disease community and its' dedicated leaderships and influencers. 

If you are interested in discussing the potential of developing a RAM Collaboration, please feel free to submit a proposal.

If you would like for the RAM membership to consider listing a resource (i.e. publication, networking event, funding opportunity, etc.) to be of use to the rare disease patient advocacy leadership community, please complete the following form for consideration.

  • LinkedIn - White Circle

The Rare Advocacy Movement (RAM) is a group of patient advocacy professionals dedicated to the overall advancement of the rare disease patient advocacy professional ecosystem and landscape. Membership and participation in RAM is subject to the observance of the established Code of Conduct for Membership ("Code of Conduct") and the acceptance of the established and adopted RAM Process Document. All members and affiliates of RAM vow to abide by the established Code of Conduct. Any RAM member or affiliate who may violate the Code of Conduct in parts and/or in its entirety will be subject to immediate removal from the RAM membership and/or affiliation.