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Stephanie Fischer

As a rare disease patient and stroke survivor, Stephanie Fischer is passionate about rare disease advocacy. She was appointed to the Pennsylvania Rare Disease Advisory Council and serves on the Advisory Board of the Rare and Undiagnosed Network. Stephanie was a strategic communications consultant to Global Genes after serving as Chief Patient Engagement and Communications Officer at the EveryLife Foundation for Rare Diseases. Prior to joining the Foundation, she spent more than 10 years focused on health policy communication at the Biotechnology Innovation Organization (BIO) and Pharmaceutical Research and Manufacturers of America (PhRMA). She previously worked for U.S. Representative Jim Greenwood (PA-8) for nine years until his retirement in 2004. Stephanie has a Bachelor of Arts in Government from Cornell University and resides in Bucks County, Pennsylvania. You can find her on Twitter as @RarePOV.