Tabitha Frank founded the Endosalpingiosis Foundation Inc. after being diagnosed with Endosalpingiosis herself and currently serves as the organization’s President. Tabitha is not only a rare disease advocate, but she is also an advocate for women. Applying the lessons learned from her own rare disease diagnostic odyssey, Tabitha hopes to serve as a guiding light for all rare disease women fighting to have their voices heard and experiences acknowledged. 

In addition to managing the day to day functions of the Endosalpingiosis Foundation Inc., Tabatha also serves in the administrative role for a private Facebook support group, with over 200 members, that provides a safe place for rare disease women to connect with each other. Tabitha believes in the power of collaborating with others. In 2019, Tabatha participated the Rare Across America initiative where she was able to network with congressmen and other rare disease advocacy leaders. Through collaborative efforts throughout the rare disease landscape to launch Endosalpingiosis Foundation Inc., Tabitha came to the realization that she is not alone in the rare disease community. Together, with her fellow rare disease advocacy leaders, Tabitha looks forward to participating in community-based projects and initiatives dedicated to advancing the rare disease advocacy community.

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The Rare Advocacy Movement (RAM) is a rare disease community-based advocacy initiative focused on addressing the issues that affect the real world people of the rare disease community.  RAM serves as a community-based Center of Insight and Collaboration for rare disease focused stakeholders seeking authentic collaborations and comprehensive community insights. Each current RAM member has made a public vow to always act in the best interests of the rare disease community through the adopted Code of Conduct for Membership or risk being removed from the RAM membership and network.