We are Rare

LIVING RARE
Perspectives, Insights & Experiences (PIE)

WE ARE RARE.

The Rare360 Editorial Team

May 31, 2023
4 min

Living Rare

Rare Diseases, Mental Health Issues, and What We Can Do About It

The Rare360 Editorial Team

May 30, 2023
7 min

Thought Leaders

Thought Leadership in Mental Health For Rare Diseases

Jessica Wong

Jan 31, 2023
5 min

Living Rare

Helping People Diagnosed with a Rare Disease Overcome Mental Health Challenges

Neuromuscular Disease Foundation

Nov 18, 2022
7 min

Diversity, Equity, Inclusion (DEI)

Accessibility

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Oct 31, 2022
3 min

Rare Disease Awareness

Dysautonomia and Gastroparesis

The Propionic Acidemia Foundation (PAF)

Oct 26, 2022
4 min

Adults Living Rare

The Care Notebook: An important tool for individuals, their families, caregivers, and medical team

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Oct 24, 2022
2 min

Living Rare

Thermoregulation Issues in Dysautonomia

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Oct 17, 2022
4 min

Living Rare

POTS: What is It?

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Oct 10, 2022
2 min

Living Rare

Dysautonomia: What is It?

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Sep 30, 2022
3 min

Adults Living Rare

Save Your Spoons!

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Sep 21, 2022
2 min

Adults Living Rare

High Pressure Headaches

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Sep 20, 2022
4 min

Living Rare

Pressure Headaches

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Sep 12, 2022
4 min

Living Rare

Why Does Pain Increase with Weather Changes?

Aston Martinez

Aug 19, 2022
5 min

Living Rare

The Impact of Healthcare Pricing & Transparency on the Rare Disease Community

Aston Martinez

Jul 29, 2022
15 min

Emergency Preparedness: Creating a Disability-Inclusive Emergency Plan

Neuromuscular Disease Foundation

Jul 25, 2022
4 min

Living Rare

Media Messaging on Inter-abled Relationships: What Are We Saying to The Disabled Community?

Aston Martinez

Jul 21, 2022
9 min

Diversity, Equity, Inclusion (DEI)

The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace

Aston Martinez

Jun 27, 2022
5 min

Living Rare

The Disability Spectrum & Why It Matters

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Jun 17, 2022
4 min

Living Rare

Tension-Type Headaches

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Jun 10, 2022
6 min

Living Rare

Food Allergies Versus Sensitivities Versus Intolerances: How to Know the Difference

Neuromuscular Disease Foundation

Jun 2, 2022
4 min

Living Rare

Consciously Shifting the Dynamic of Patient Storytelling

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

May 27, 2022
6 min

Living Rare

Applying for Jobs with a Disability

Aston Martinez

May 24, 2022
8 min

Living Rare

The Harms of Being Labeled a ‘Difficult’ Patient

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

May 20, 2022
6 min

Living Rare

LIVING RARE Perspectives, Insights & Experiences (PIE)

Rare Diseases, Mental Health Issues, and What We Can Do About It

Thought Leadership in Mental Health For Rare Diseases

Helping People Diagnosed with a Rare Disease Overcome Mental Health Challenges

Accessibility

Dysautonomia and Gastroparesis

The Care Notebook: An important tool for individuals, their families, caregivers, and medical team

Thermoregulation Issues in Dysautonomia

POTS: What is It?

Dysautonomia: What is It?

Save Your Spoons!

High Pressure Headaches

Pressure Headaches

Why Does Pain Increase with Weather Changes?

The Impact of Healthcare Pricing & Transparency on the Rare Disease Community

Emergency Preparedness: Creating a Disability-Inclusive Emergency Plan

Media Messaging on Inter-abled Relationships: What Are We Saying to The Disabled Community?

The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace

The Disability Spectrum & Why It Matters

Tension-Type Headaches

Food Allergies Versus Sensitivities Versus Intolerances: How to Know the Difference

Consciously Shifting the Dynamic of Patient Storytelling

Applying for Jobs with a Disability

The Harms of Being Labeled a ‘Difficult’ Patient

Where the Body and Mind Intersect

LIVING RARE
Perspectives, Insights & Experiences (PIE)