Rare Diseases, Mental Health Issues, and What We Can Do About It

Thought Leadership in Mental Health For Rare Diseases

Helping People Diagnosed with a Rare Disease Overcome Mental Health Challenges

Accessibility

Dysautonomia and Gastroparesis

The Care Notebook: An important tool for individuals, their families, caregivers, and medical team

Thermoregulation Issues in Dysautonomia

POTS: What is It?

Dysautonomia: What is It?

Save Your Spoons!

High Pressure Headaches

Pressure Headaches

Why Does Pain Increase with Weather Changes?

The Impact of Healthcare Pricing & Transparency on the Rare Disease Community

Media Messaging on Inter-abled Relationships: What Are We Saying to The Disabled Community?

The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace

The Disability Spectrum & Why It Matters

Tension-Type Headaches

Food Allergies Versus Sensitivities Versus Intolerances: How to Know the Difference

Consciously Shifting the Dynamic of Patient Storytelling

Applying for Jobs with a Disability

The Harms of Being Labeled a ‘Difficult’ Patient

Where the Body and Mind Intersect