The Rare360 Editorial TeamMay 31, 20234 minLiving RareRare Diseases, Mental Health Issues, and What We Can Do About It For the rare disease community, mental health is not just a topic to discuss during the month of May. Mental health must remain a priority.
The Rare360 Editorial TeamMay 30, 20237 minThought LeadersThought Leadership in Mental Health For Rare DiseasesA discussion with Mental Health for Rare Thought Leader JC Muyl
Jessica WongJan 31, 20235 minLiving RareHelping People Diagnosed with a Rare Disease Overcome Mental Health ChallengesMental health challenges affect people of all ages, including children and teenagers...
Neuromuscular Disease FoundationNov 18, 20227 minDiversity, Equity, Inclusion (DEI)AccessibilityWhere are we still falling short? Where can accommodations for disabled persons be improved? November 18, 2022 “Staff were huffing and...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT Oct 31, 20223 minRare Disease AwarenessDysautonomia and GastroparesisGastroparesis is a condition caused by the slowed or stopped movement or contraction of your stomach muscles...
The Propionic Acidemia Foundation (PAF)Oct 26, 20224 minAdults Living RareThe Care Notebook: An important tool for individuals, their families, caregivers, and medical teamOctober 26, 2022 Those with rare and complex disorders and their caregivers hold a crucial role in their care team. They often have to...