Neuromuscular Disease FoundationNov 18, 20227 minDiversity, Equity, Inclusion (DEI)AccessibilityWhere are we still falling short? Where can accommodations for disabled persons be improved? November 18, 2022 “Staff were huffing and...
The Propionic Acidemia Foundation (PAF)Oct 26, 20224 minAdults Living RareThe Care Notebook: An important tool for individuals, their families, caregivers, and medical teamOctober 26, 2022 Those with rare and complex disorders and their caregivers hold a crucial role in their care team. They often have to...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT Oct 10, 20222 minLiving RareDysautonomia: What is It?October is Dysautonomia Awareness Month, so my blogs for this month will focus on difference symptoms of and supportive treatments for ...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT Sep 30, 20223 minAdults Living RareSave Your Spoons!An Energy Conservation Strategy for People Living with Chronic Illnesses