Jessica Wong
Helping People Diagnosed with a Rare Disease Overcome Mental Health Challenges
Mental health challenges affect people of all ages, including children and teenagers...
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LIVING RARE
Perspectives, Insights & Experiences (PIE)
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Neuromuscular Disease Foundation
- Nov 18, 2022
- 7 min
Accessibility
Where are we still falling short? Where can accommodations for disabled persons be improved? November 18, 2022 “Staff were huffing and...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
- Oct 24, 2022
- 2 min
Thermoregulation Issues in Dysautonomia
October 24, 2022 - Written By: Maria Arini Lopez, PT, DPT Symptoms of dysautonomia are caused due to dysfunction within the autonomic...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
- Oct 17, 2022
- 4 min
POTS: What is It?
POTS is one of the many possible symptoms of dysautonomia, a disorder affecting the autonomic nervous system (ANS).
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
- Oct 10, 2022
- 2 min
Dysautonomia: What is It?
October is Dysautonomia Awareness Month, so my blogs for this month will focus on difference symptoms of and supportive treatments for ...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
- Sep 30, 2022
- 3 min
Save Your Spoons!
An Energy Conservation Strategy for People Living with Chronic Illnesses
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
- Sep 21, 2022
- 2 min
High Pressure Headaches
What is the difference between low pressure headaches and high pressure headaches?
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
- Sep 20, 2022
- 4 min
Pressure Headaches
CSF surrounds the brain and spinal cord and is contained within the meninges...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
- Sep 12, 2022
- 4 min
Why Does Pain Increase with Weather Changes?
September 12, 2022 - Written By: Maria Arini Lopez, PT, DPT Do you ever feel that your joints, bones, muscles, and/or head start to...
Aston Martinez
- Aug 19, 2022
- 5 min
The Impact of Healthcare Pricing & Transparency on the Rare Disease Community
Imagine this: you’ve just arrived back home from running errands and decide to check the mail, whereupon you find that you’ve received an ou
Neuromuscular Disease Foundation
- Jul 25, 2022
- 4 min
Media Messaging on Inter-abled Relationships: What Are We Saying to The Disabled Community?
The trending Netflix show “Love on The Spectrum” features Autistic twenty-somethings who are navigating the dating world in search of ...
Aston Martinez
- Jul 21, 2022
- 9 min
The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace
The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace
Aston Martinez
- Jun 27, 2022
- 5 min
The Disability Spectrum & Why It Matters
The Disability Spectrum & Why It Matters
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
- Jun 17, 2022
- 4 min
Tension-Type Headaches
Headaches can be debilitating, making focus and concentration at school or work incredibly difficult. They are one of the top health reasons
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
- Jun 10, 2022
- 6 min
Food Allergies Versus Sensitivities Versus Intolerances: How to Know the Difference
June 10, 2022 - Written By: Maria Arini Lopez, PT, DPT Many people experience uncomfortable sensations or reactions after eating—from...
Neuromuscular Disease Foundation
- Jun 2, 2022
- 4 min
Consciously Shifting the Dynamic of Patient Storytelling
The Neuromuscular Disease Foundation and RAM Challenge You to Change the Way You Tell Patients’ Stories
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
- May 27, 2022
- 6 min
Applying for Jobs with a Disability
May 27, 2022 - Written By: Maria Arini Lopez, PT, DPT Under the best of circumstances, applying for a new job is stressful and...
Aston Martinez
- May 24, 2022
- 8 min
The Harms of Being Labeled a ‘Difficult’ Patient
The Harms of Being Labeled a ‘Difficult’ Patient
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
- May 20, 2022
- 6 min
Where the Body and Mind Intersect
How does a rare disease diagnosis, chronic illness, or disability affect a person's mental health?
Aston Martinez
- May 16, 2022
- 5 min
Are Mobile Healthcare Apps Jeopardizing Your Privacy?
For many people, it doesn’t come as much of a surprise that any online technology carries massive risks to our privacy...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
- May 13, 2022
- 3 min
What are Expanded Access Programs?
What happens when you can't participate in a clinical trial for whatever reason? Expanded Access happens...
Aston Martinez
- May 9, 2022
- 7 min
Dating & Healthy Relationships for People with Disabilities
Many people mistakenly believe that people with disabilities don’t desire sex and relationships, or that they are entirely unable to do so.
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
- May 6, 2022
- 5 min
Trigger Points: What are They and How Do They Contribute to Pain?
Have you ever had a massage where the therapist found an especially tender area in the muscle that felt like a knot?
Aston Martinez
- May 2, 2022
- 8 min
Value Your Rare
As members of the rare disease community, it's easy to feel isolated, unheard, invisible and exploited...
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