Neuromuscular Disease FoundationNov 18, 20227 minDiversity, Equity, Inclusion (DEI)AccessibilityWhere are we still falling short? Where can accommodations for disabled persons be improved? November 18, 2022 “Staff were huffing and...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT Oct 31, 20223 minRare Disease AwarenessDysautonomia and GastroparesisGastroparesis is a condition caused by the slowed or stopped movement or contraction of your stomach muscles...
The Propionic Acidemia Foundation (PAF)Oct 26, 20224 minAdults Living RareThe Care Notebook: An important tool for individuals, their families, caregivers, and medical teamOctober 26, 2022 Those with rare and complex disorders and their caregivers hold a crucial role in their care team. They often have to...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT Oct 24, 20222 minLiving RareThermoregulation Issues in DysautonomiaOctober 24, 2022 - Written By: Maria Arini Lopez, PT, DPT Symptoms of dysautonomia are caused due to dysfunction within the autonomic...