• Home

    • Member's Lobby

  • Resources

    • Code of Conduct for Membership
    • Publications
    • Living Rare Editorials

  • Collaborations

  • Contact

    • CONTRIBUTE

  • More

    Use tab to navigate through the menu items.
    Image by redcharlie

      LIVING RARE 
    Perspectives, Insights & Experiences (PIE)

    WE ARE RARE.
    • All Posts
    • OLM DEI Initiative
    • Adults Living Rare Initiative
    • Rare Families Financial Assistance
    • Living Rare
    Search
    Tragedy and Hope: the Voices of the Living Rare Community in Ukraine 🇺🇦
    Olha Urys
    • Mar 25
    • 7 min
    Rare Families Financial Assistance

    Tragedy and Hope: the Voices of the Living Rare Community in Ukraine 🇺🇦

    The morning of February 24th has changed the life of every Ukrainian forever.

    JOIN OUR MAILING LIST

    • TikTok
    • YouTube
    • LinkedIn - White Circle

    The Rare Advocacy Movement (RAM) is the first sustainable rare disease community-based network designed to benefit people with lived rare disease experiences.  RAM is dedicated to empowering the people of the rare disease community, the only source for comprehensive medically complex perspectives, insights and experiences (PIE). RAM membership is held by community-based advocates/activists and community-focused advocacy allies willing to make a public vow to always act in the best interest of the naturally diverse people of the rare disease community by abiding by the Code of Conduct for Membership. Violations of the Code of Conduct for Membership can result in resignation from the RAM membership via majority vote. For those not yet ready for RAM Membership, partnerships and trusted stakeholder options are available through the Rare360.

    © 2017- 2022. Rare Advocacy Movement. All rights reserved in partnership through Rare360 by Rare Love Ventures.