Neuromuscular Disease Foundation
Accessibility
Where are we still falling short? Where can accommodations for disabled persons be improved? November 18, 2022 “Staff were huffing and...
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LIVING RARE
Perspectives, Insights & Experiences (PIE)
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Aston Martinez
- Jul 21, 2022
- 9 min
The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace
The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace
"Our Lives Matter"
- Feb 28, 2021
- 5 min
"We CARE About Rare Lives"
"We CARE About Rare Lives" is the community-focused response to the "Our Lives Matter" global rare disease call-to-action.
"Our Lives Matter"
- Jan 25, 2021
- 11 min
In response to the RARE-X DEIP Announcement
An important message on behalf of the rare disease community of color written by the “Our Lives Matter” Diversity, Equity, Inclusion (OLM DE
Adults Living Rare
- Mar 5, 2020
- 1 min
The first Community-based stakeholder collaboration zone
This event will be hosting the very first Community-Based Collaboration Zone, a two hour event curated by the Rare Advocacy Movement.
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