Helping People Diagnosed with a Rare Disease Overcome Mental Health Challenges
Mental health challenges affect people of all ages, including children and teenagers...
Helping People Diagnosed with a Rare Disease Overcome Mental Health Challenges
Accessibility
Dysautonomia and Gastroparesis
The Care Notebook: An important tool for individuals, their families, caregivers, and medical team
Thermoregulation Issues in Dysautonomia
POTS: What is It?
Dysautonomia: What is It?
Save Your Spoons!
High Pressure Headaches
The Impact of Healthcare Pricing & Transparency on the Rare Disease Community
Tension-Type Headaches
Consciously Shifting the Dynamic of Patient Storytelling
Applying for Jobs with a Disability
The Harms of Being Labeled a ‘Difficult’ Patient
Where the Body and Mind Intersect
What are Expanded Access Programs?
Trigger Points: What are They and How Do They Contribute to Pain?
Value Your Rare
Human Genome Now Practically Fully Sequenced: What does this mean for the Rare Disease Community?
Dry Eye Can Contribute to Fatigue 🥱
Tips and Tricks to Improve your Sleep 😴
Tragedy and Hope: the Voices of the Living Rare Community in Ukraine 🇺🇦
"We CARE About Rare Lives"
In response to the RARE-X DEIP Announcement