Jessica Wong
Helping People Diagnosed with a Rare Disease Overcome Mental Health Challenges
Mental health challenges affect people of all ages, including children and teenagers...
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LIVING RARE
Perspectives, Insights & Experiences (PIE)
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The Propionic Acidemia Foundation (PAF)
Oct 26, 20224 min
The Care Notebook: An important tool for individuals, their families, caregivers, and medical team
October 26, 2022 Those with rare and complex disorders and their caregivers hold a crucial role in their care team. They often have to...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
May 27, 20226 min
Applying for Jobs with a Disability
May 27, 2022 - Written By: Maria Arini Lopez, PT, DPT Under the best of circumstances, applying for a new job is stressful and...
Aston Martinez
May 9, 20227 min
Dating & Healthy Relationships for People with Disabilities
Many people mistakenly believe that people with disabilities don’t desire sex and relationships, or that they are entirely unable to do so.
Olha Urys
Mar 25, 20227 min
Tragedy and Hope: the Voices of the Living Rare Community in Ukraine 🇺🇦
The morning of February 24th has changed the life of every Ukrainian forever.
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