Image by redcharlie

 "We CARE About Rare Lives" 

 A directory of human-focused organizations dedicated to answering the "Our Lives Matter" diversity, equity and inclusion calls to action. 

In order to overcome the fear of facing such a difficult topic, you have to be willing to unLearn deep rooted biases. You have to be open to being comfortable with your discomfort, regardless of your racial classification. You have to chose to be responsible. Only then, will you be ready to take authentic action to embrace the lessons, knowledge and understanding that the "Our Lives Matter" diversity, equity and inclusion programs offer.

- a rare disease person of color

  • LinkedIn - White Circle

The Rare Advocacy Movement (RAM) is a rare disease community-based advocacy initiative focused on addressing the issues that affect the real world people of the rare disease community.  RAM serves as a community-based Center of Insight and Collaboration for rare disease focused stakeholders seeking authentic collaborations and comprehensive community insights. Each current RAM member has made a public vow to always act in the best interests of the rare disease community through the adopted Code of Conduct for Membership or risk being removed from the RAM membership and network.