The Rare360 Editorial Team
Rare Diseases, Mental Health Issues, and What We Can Do About It
For the rare disease community, mental health is not just a topic to discuss during the month of May. Mental health must remain a priority.
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The Rare360 Editorial Team
- May 30, 2023
- 7 min
Thought Leadership in Mental Health For Rare Diseases
A discussion with Mental Health for Rare Thought Leader JC Muyl
Jessica Wong
- Jan 31, 2023
- 5 min
Helping People Diagnosed with a Rare Disease Overcome Mental Health Challenges
Mental health challenges affect people of all ages, including children and teenagers...
Neuromuscular Disease Foundation
- Nov 18, 2022
- 7 min
Accessibility
Where are we still falling short? Where can accommodations for disabled persons be improved? November 18, 2022 “Staff were huffing and...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
- Oct 31, 2022
- 3 min
Dysautonomia and Gastroparesis
Gastroparesis is a condition caused by the slowed or stopped movement or contraction of your stomach muscles...
The Propionic Acidemia Foundation (PAF)
- Oct 26, 2022
- 4 min
The Care Notebook: An important tool for individuals, their families, caregivers, and medical team
October 26, 2022 Those with rare and complex disorders and their caregivers hold a crucial role in their care team. They often have to...
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