Image by redcharlie

 "We CARE About Rare Lives" 

In order to overcome the fear of facing such a difficult topic, you have to be willing to unLearn deep rooted biases. You have to be open to being comfortable with your discomfort, regardless of your racial classification. You have to chose to be responsible. Only then, will you be ready to take authentic action to embrace the lessons, knowledge and understanding that the "Our Lives Matter" diversity, equity and inclusion programs offer.

- a rare disease person of color

Search
  • LinkedIn - White Circle

The Rare Advocacy Movement (RAM) is a novel rare disease community-based advocacy network designed to address the issues that affect the real world people of the rare disease community.  RAM is the only community-based Center of Insight and Collaboration Zone offering rare disease stakeholders authentic, comprehensive real world insights, from the source. Each RAM member has made a public vow to always act in the best interest of the rare disease community by abiding by the Code of Conduct for Membership. Those who violate the Code of Conduct for Membership risk removal from the RAM membership and access to the global network via majority vote.