We are rare.
Rare Advocacy Movement (RAM) is the first community-based network of professional activists and allied advocates dedicated to protecting the interests of the global community of people living with rare conditions, life altering disabilities, medical complexities, and their families.
Committed to transparency, RAM collaborates with trusted, dedicated, and allied stakeholders to support and drive dissemination of news, information, resources, programs and so much more for patients, caregivers, care partners and families impacted by chronic, debilitating rare health conditions.
RAM was strategically designed to address the critical unmet needs of the global rare disease community. With lifesaving scientific discoveries being developed across the rare and complex disease ecosystem, RAM is dedicated to bridging gaps, addressing life threatening silos and bottlenecks and centralizing patient quality of life across the healthcare landscape.
If you have questions after exploring RAM's site, please do not hesitate to contact us and request an introductory call.