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RARE

ADVOCACY

MOVEMENT

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Thank you so much for your interest in connecting with us! We acknowledge receipt of your email inquiry and will respond with follow-ups on a case-by-case basis. Please be patient as we are receiving a large volume of inquiries. Thank you for taking the time to reach out and we hope to be in touch soon.

The Rare Advocacy Movement (RAM) is a rare disease focused community advocacy initiative focused on addressing the issues that affect the real world people of the rare disease community. RAM serves as a community-based professional network and Center of Insight (COI) for rare disease focused stakeholders seeking authentic connections and unadulterated community insights. The RAM membership is comprised of a network of patient advocacy community expert professionals that have vowed to abide by the established Code of Conduct for Membership. As a result, every current RAM member has made a public vow to always act in the best interest of the rare disease community.