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RARE

ADVOCACY

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Thank you so much for your interest in connecting with us! We acknowledge receipt of your email inquiry and will respond with follow-ups on a case-by-case basis. Please be patient as we are receiving a large volume of inquiries. Thank you for taking the time to reach out and we hope to be in touch soon.

The Rare Advocacy Movement (RAM) is a rare disease community-based advocacy initiative focused on addressing the issues that affect the real world people of the rare disease community. RAM serves as a community-based Center of Insight and Collaboration for rare disease focused stakeholders seeking authentic collaborations and comprehensive community insights. Each current RAM member has made a public vow to always act in the best interests of the rare disease community through the adopted Code of Conduct for Membership or risk being removed from the RAM membership and network.