RAM is a network of trusted key opinion leaders (KOLs) and experts in the field of rare disease patient advocacy. One of the goals of RAM is to organize and share the unique and valuable insights from rare Leaders and rare Advocates from all corners of the rare disease ecosystem to gain a comprehensive  understanding of the rare disease landscape.



  • LinkedIn - White Circle

The Rare Advocacy Movement (RAM) is a group of patient advocacy professionals dedicated to the overall advancement of the rare disease patient advocacy professional ecosystem and landscape. Membership and participation in RAM is subject to the observance of the established Code of Conduct for Membership ("Code of Conduct") and the acceptance of the established and adopted RAM Process Document. All members and affiliates of RAM vow to abide by the established Code of Conduct. Any RAM member or affiliate who may violate the Code of Conduct in parts and/or in its entirety will be subject to immediate removal from the RAM membership and/or affiliation.