RAM Collaborations

RAM offers various stakeholders functioning within the rare disease landscape with the opportunity to develop collaborative relationships and community-focused initiatives with dedicated rare disease advocacy community professionals. One of the top goal for these multi-faceted RAM collaborations is the development of mutually beneficial partnerships, with the overall improvement of the rare disease patient community always at the forefront of each initiative.


Because trust is imperative when working within the rare disease landscape, RAM is a neutral platform for trusted community leaders to not only professionally vet each other, but to also develop trusting professional relationships with members of industry.  

Rare Focused


RAM is a rare disease community brand, managed by rare disease advocacy professionals. As a virtual Center of Insight, RAM curates resourceful articles and reports that reveal rare disease insights that matter to the community.

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The Rare Advocacy Movement (RAM) is a patient advocacy initiative focused on documenting the evolving complex ecosystem and unique dynamics of the rare disease patient advocacy landscape. RAM serves as community-based professional network and Center of Insight (COI) for rare disease focused stakeholders. The RAM membership is comprised of a network of patient advocacy community expert professionals that have vowed to abide by the established Code of Conduct for Membership.