Resources

RAM Collaborations

RAM offers various stakeholders functioning within the rare disease landscape with the opportunity to develop collaborative relationships and community-focused initiatives with dedicated rare disease advocacy community professionals. One of the top goal for a RAM collaboration is the development of solution-based, sustainable collaborations dedicated to the overall improvement of the diverse rare disease community.

 

Because trust is imperative when working within the rare disease landscape, RAM is a neutral platform for trusted community leaders to not only professionally vet each other, but to also develop trusting professional relationships with various rare disease focused stakeholders.  

Rare Focused

Publications

RAM is a rare disease community network, managed by rare disease community professionals and vetted allies.

 

Functioning as a virtual Center of Insight for rare disease community matters, RAM regularly curates resourceful articles and reports that reveal rare disease insights that matter to the community and the stakeholders that are focused on improve the lives of rare disease people.

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The Rare Advocacy Movement (RAM) is a rare disease focused community advocacy initiative focused on addressing the issues that affect the real world people of the rare disease community.  RAM serves as a community-based professional network and Center of Insight (COI) for rare disease focused stakeholders seeking authentic connections and unadulterated community insights. The RAM membership is comprised of a network of patient advocacy community expert professionals that have vowed to abide by the established Code of Conduct for Membership. As a result, every current RAM member has made a public vow to always act in the best interest of the rare disease community.