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The Rare Advocacy Movement (RAM) is a group of patient advocacy professionals dedicated to the overall advancement of the rare disease patient advocacy professional ecosystem and landscape. Membership and participation in RAM is subject to the observance of the established Code of Conduct for Membership ("Code of Conduct") and the acceptance of the established and adopted RAM Process Document. All members and affiliates of RAM vow to abide by the established Code of Conduct. Any RAM member or affiliate who may violate the Code of Conduct in parts and/or in its entirety will be subject to immediate removal from the RAM membership and/or affiliation.


RAM offers the various stakeholders that function within the rare disease landscape the opportunity to develop collaborative relationships with each other. One of the top goals for several of these multi-faceted collaborations is the ultimate development of mutually beneficial partnerships, with the benefit of the patient community always at the forefront of each initiative.


Because trust is imperative when working within the rare disease landscape, RAM offers a platform for trusted leaders of the rare disease advocacy community to vet each other and members of industry.  

Interested in collaborating with community rareleaders?

If you and/or your team are interested in discussing collaboration opportunities with a member of RAM, please complete the form below and submit for consideration.