Collaborations

"Our Lives Matter" DEI Initiative

A RAM Membership - Contributor Collaboration

DEI stands for Diversity, Equity, Inclusion.

 

Collaborate

for

Rare Lives 

A RAM Membership Collaboration

 

ADULTS LIVING RARE

Initiative

A RAM Membership - Contributor Collaboration

 

FAIR MARKET VALUES

A RAM Collaboration

 

Let's Face This Together!

A RAM - Same But Different Collaboration

 
ThinkGen.png

MISSING ENDPOINTS

A RAM - ThinkGen Collaboration

 

CONNECTING INDUSTRY STAKEHOLDERS WITH EXPERTS OF RARE DISEASE COMMUNITIES

A RAM Collaboration

 

SUPPORT BEYOND THERAPEUTIC PRODUCTS

A RAM Membership Collaboration

 
  • LinkedIn - White Circle

The Rare Advocacy Movement (RAM) is a novel rare disease community-based advocacy network designed to address the issues that affect the real world people of the rare disease community.  RAM is the only community-based Center of Insight and Collaboration Zone offering rare disease stakeholders authentic, comprehensive real world insights, from the source. Each RAM member has made a public vow to always act in the best interest of the rare disease community by abiding by the Code of Conduct for Membership. Those who violate the Code of Conduct for Membership risk removal from the RAM membership and access to the global network via majority vote.