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What is HEDI?
HEDI stands for Health Equity Diagnostic Infrastructure, a Phase 2 initiative of the Rare Advocacy Movement. HEDI aims to establish a world where any person living with a rare disease has access to efficient and accurate diagnostic services, without the express exploitation of patient health data.
VOICE OF THE GLOBAL RARE DISEASE COMMUNITY PETITION​
One of the initial steps to accomplishing Phase 2 of the Rare Advocacy Movement is to establish one unified global rare disease definition.
These matters and more are scheduled to be discussed at the Rare Therapeutics Summit
TBD​
The Grand Hyatt Regency, Puerto Rico
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