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What is HEDI?

HEDI stands for Health Equity Diagnostic Infrastructure, a Phase 2 initiative of the Rare Advocacy Movement. HEDI aims to establish a world where any person living with a rare disease has access to efficient and accurate diagnostic services, without the express exploitation of patient health data. 

VOICE OF THE GLOBAL RARE DISEASE COMMUNITY PETITION

One of the initial steps to accomplishing Phase 2 of the Rare Advocacy Movement is to establish one unified global rare disease definition.

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These matters and more are scheduled to be discussed at the Rare Therapeutics Summit

TBD

The Grand Hyatt Regency, Puerto Rico

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