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What is HEDI?
HEDI stands for Health Equity Diagnostic Infrastructure. Phase 2 of the Rare Advocacy Movement, HEDI aims to establish a world where any person living with a rare disease has access to an accurate diagnosis.
VOICE OF THE GLOBAL RARE DISEASE COMMUNITY PETITION
One of the initial steps to accomplishing Phase 2 of the Rare Advocacy Movement is to establish one unified global rare disease definition.
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