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What is HEDI?

HEDI stands for Health Equity Diagnostic Infrastructure. Phase 2 of the Rare Advocacy Movement, HEDI aims to establish a world where any person living with a rare disease has access to an accurate diagnosis. 

VOICE OF THE GLOBAL RARE DISEASE COMMUNITY PETITION

One of the initial steps to accomplishing Phase 2 of the Rare Advocacy Movement is to establish one unified global rare disease definition.

Abstract Linear Background

These matters and more are scheduled to be discussed at GT+R 2023

June 26 - 29, 2023

The Westin Waltham Boston

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