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What is Rare360?

Rare360 is the first rare disease community-based business center, powered by RAM.  Designed to connect community-focused stakeholders dedicated to developing trusted relationships across the rare disease ecosystem. Rare360 requires the Perspectives, Insights & Experiences (PIE) of people living with rare diseases or caring for a person with a rare condition to be valued and respected.

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A prestigious and ambitious partnership program, only thoroughly vetted companies qualify to become rare360 partners. Industry, academic and advocacy-based stakeholders who qualify for a rare360 partnership must be community-focused and sincerely working to improve the lives of patients, carers and their families through respectful conscious engagement. 

Rare360.life, powered by RAM's Rare360 program, provides updates, insights, and education covering therapeutic discoveries, promising health innovations and other community-based topics of interest that support informed decision-making and empowered health and wellness management for people and families impacted by chronic, life-altering rare conditions.

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Why Us

Rare Advocacy Movement (RAM) is the first community-based network of professional activists and allied advocates dedicated to protecting the interests of people living with rare conditions, disabilities, medical complexities, and their families, on a global scale.
 

Committed to transparency and objectivity, RAM empowers collaboration between trusted, dedicated, and allied stakeholders to support and drive dissemination of news, information, resources and programming for people and families impacted by chronic, debilitating diseases through the rare360 program.

Rare360.life was created to address the critical unmet informational needs of the global patient and carer community. With lifesaving scientific discoveries being developed across the rare and complex disease ecosystem, Rare360.life centralizes access to credible, relatable, and trustworthy information on the latest developments in the field.

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To learn more visit Rare360.life.           

Click Here to contact the Rare360 Editorial Team.

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The Rare Advocacy Movement (RAM) is the first sustainable rare disease community-based network designed to unite and empower people with lived rare disease experiences.  RAM is dedicated to protecting the fair market value of the community's perspectives, insights and experiences (PIE). All RAM members vow to always act in the best interest of the global rare disease community by abiding by the Code of Conduct for Membership. Violations of the Code of Conduct for Membership shall result in resignation from the RAM membership via majority vote. For those not yet ready for RAM Membership, partnerships and trusted stakeholder options are available through Rare360.

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© Copyright 2017-2024. Rare Love Ventures. All rights reserved in partnership through RARE360.

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