Image by Cytonn Photography
A UNIQUE DIVERSE TEAM with ROOTS in the RARE DISEASE & DISABILITY COMMUNITIES
THe TEAM ~Over 150 years of Real world Experience
The Rare Black Lives Matter Too team consists of a diverse group of professional advocacy leaders of color, with over 150 years of real world experience. This RAM Collaboration team is qualified to advise and consult on DEI (Diversity, Equity & Inclusion) programs and initiatives. As a unit, this team specializes in rare disease community matters, as well as issues that affect the greater disability communities of color. In addition to building programs for industry, this team is well versed in advising on the establishment of sustainable industry-led initiatives that are mutually beneficial for both members of the nonprofit advocacy community, the patient/caregiver community, and a variety of industry stakeholders.
 
Combined, the network of the Rare Black Lives Matter Too team consists of professional advocates of color with extensive experience in rare disease, chronic illness, disability, pharmaceutical therapeutic development, DEI corporate and nonprofit program development, legislative and policy analysis, and corporate educational initiatives with an understanding of cultural sensitivities.
The extensive network of the Rare Black Lives Matter Too team has what your network needs to diversify and grow in a sustainable, equitable and inclusive manner.
 

Free Consultation Request

arrow&v
Image by NESA by Makers
Logo- no background.png

RAM is a rare disease community leadership network founded on the premise of developing mutually beneficial collaborations between rare disease community leaders, influencers, experts and other rare disease stakeholders, with the goal of developing insightful publications dubbed RAM Collaborations. 

RAM removes toxic competition amongst community rare disease leaders, influencers and experts and replaces it with support, camaraderie and mentorship as patient advocacy professional navigate the rare disease industry, regardless of which disease specific community one originally belongs to.  The RAM network encourages unity, collaboration and support amongst the membership, embracing the concept, "a win for one is a win for us all".   ​

  • LinkedIn - White Circle

The Rare Advocacy Movement (RAM) is a patient advocacy initiative focused on documenting the evolving complex structure and unique dynamics of the rare disease patient advocacy landscape. RAM serves as a Center of Insight (COI) for those interested in participating in collaborative patient advocacy initiatives and working groups within the rare disease industry. The RAM membership is comprised of a network of patient advocacy professionals that have vowed to abide by the established Code of Conduct for Membership.