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The Rare

Black Lives Matter Too Team

-Specializing in Disability & Rare Disease People Of Color Dynamics

THe TEAM ~Over 150 years of Real world Experience
The Rare Black Lives Matter Too team consists of a diverse group of professional advocacy leaders of color, with over 150 years of real world experience and a combined 50 years of professionally incorporating diversity, equity and inclusion principles into programs experience. The Rare Black Lives Matter Too team is qualified to offer guidance, insights and execute the "Our Lives Matter" DEI programs to provide your organization with the knowledge and content necessary to execute inclusive programs and initiatives. As a unit, this team specializes in rare disease community matters, as well as issues that affect the greater disability communities of color. In addition to building programs for industry, this team is well versed in advising on the establishment of sustainable industry-led initiatives that are mutually beneficial for both members of the nonprofit advocacy community, the patient/caregiver community, and a variety of affiliated industry stakeholders.
Combined, the network of the Rare Black Lives Matter Too team consists of professional advocates of color with extensive experience in rare disease, chronic illness, disability, pharmaceutical therapeutic development, diversifying clinical trial participation and retention, DEI corporate and nonprofit program development, legislative and policy analysis, and corporate educational initiatives with an understanding of cultural sensitivities.
The extensive network of the Rare Black Lives Matter Too team has what your network needs to diversify and grow in a sustainable, equitable and inclusive manner.

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New Love Ventures

RAM has partnered with New Love Ventures to support the administrative needs of the "Our Lives Matter" DEI (Diversity, Equity, Inclusion) programs.

New Love Ventures, the creator of the New Love Human Culture trademark, is a novel Venture Philanthropy company determined to support initiatives that serve humanitarian efforts, in addition to supporting meaningful distribution of and access to resources, opportunity and the pursuit of happiness for humans of all types.​

New Love Ventures has recently launched the "Our Lives Matter" collection in support of the DEI programs that are dedicated to diversifying clinical trials, the rare disease advocacy environment, and correcting racial healthcare disparities. 

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The Rare Advocacy Movement (RAM) is a patient advocacy initiative focused on documenting the evolving complex ecosystem and unique dynamics of the rare disease patient advocacy landscape. RAM serves as community-based professional network and Center of Insight (COI) for rare disease focused stakeholders. The RAM membership is comprised of a network of patient advocacy community expert professionals that have vowed to abide by the established Code of Conduct for Membership.