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"Our Lives Matter"

Welcome to the Forum!

It’s good to have you here! Feel free to share anything - stories, ideas, pictures or whatever is on your mind. Here you can start discussions, connect with members, reply to comments, and more. Have something to say? Leave a comment or share a post!

Feb 28, 2019

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The Rare Advocacy Movement (RAM) is the first sustainable rare disease community-based network designed to unite and empower people with lived rare disease experiences. RAM is dedicated to protecting the fair market value of the community's perspectives, insights and experiences (PIE). All RAM members vow to always act in the best interest of the global rare disease community by abiding by the Code of Conduct for Membership. Violations of the Code of Conduct for Membership shall result in resignation from the RAM membership via majority vote. For those not yet ready for RAM Membership, partnerships and trusted stakeholder options are available through Rare360.

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