Welcome to the Forum!

It’s good to have you here! Feel free to share anything - stories, ideas, pictures or whatever is on your mind. Here you can start discussions, connect with members, reply to comments, and more.

Have something to say? Leave a comment or share a post!

0 comments

0

0 comments

JOIN OUR MAILING LIST

The Rare Advocacy Movement (RAM) is the first sustainable rare disease community-based network designed to benefit people with lived rare disease experiences. RAM is dedicated to empowering the people of the rare disease community, the only source for comprehensive medically complex perspectives, insights and experiences (PIE). RAM membership is held by community-based advocates/activists and community-focused advocacy allies willing to make a public vow to always act in the best interest of the naturally diverse people of the rare disease community by abiding by the Code of Conduct for Membership. Violations of the Code of Conduct for Membership can result in resignation from the RAM membership via majority vote. For those not yet ready for RAM Membership, partnerships and trusted stakeholder options are available through the Rare360.