mENTAL hEALTH FOR rARE
A RAM & MyRareData Collaboration
Mental Health is a large unmet need for rare disease patients, with 90% of the approximately 400 million rare disease patients in the world (30 million of which reside in the US) struggling with mental health issues.
Mental Health for Rare envisions a world where rare disease patients, caregivers, care partners and siblings have access to mental health resources and services that are adapted to their unique needs.
GOALS
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Adapt existing Mental Health solutions to the needs of the rare disease community.
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Launch mutually beneficial collaborations that improve access to Mental Health resources for rare disease patients, caregivers, care partners and siblings.
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Promote the use of Mental Health resources across the rare disease ecosystem.
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Support research & publications that analyze the progress and impact of Mental Health solutions dedicated to addressing the unique needs of the rare disease community.
stakeholder Call to Action
Rare patients and their families work tirelessly to improve quality of life, search for a cure and raise money. MyRareData believes that digital health can help rare patient groups reach their goals faster. MyRareData helps digital health organizations and rare patient groups:
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Implement tools that improve quality of life for patients
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Leverage data to drive research & better information about rare conditions
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Raise money through data
All net proceeds from MyRareData activities directly benefit rare disease patients.