Nadia Bodkin, Pharm.D., M.S.
Nadia is a seasoned rare disease patient advocate, born with three genetic rare conditions. Nadia went straight into professional advocacy work post graduation through a foundation she founded as a pharmacy student, EDSers United. Since entering the rare disease advocacy space through the Ehlers-Danlos Syndrome community, Nadia has held numerous leadership positions with various rare disease advocacy focused organizations developing a variety of community-focused campaigns and initiatives in collaboration with industry-based stakeholders, all of which have always had one goal in common: supporting the rare disease community's best interests. After working as a consultant conducting landscape analysis, nonprofit business growth and development protocols, digital health community development and engagement strategies, therapeutic development guidance, etc., she decided to found the Rare Advocacy Movement to eliminate silos and streamline communications to enhance collaborative network opportunities. 
Today, Nadia is currently the Chief Executive Officer for Blaze Therapeutics, one of the founding members of New Love Ventures and the founder of the Rare Advocacy Movement.
Nadia functions on the premise of making the most of the time that she has on Earth; and she is doing just that by dedicating her efforts towards improving the lives of those affected by rare conditions, disabled Veterans, and other like-minded individuals through novel sustainable initiatives and innovative multi-stakeholder collaborations.
Follow Nadia on social media @NadiaBodkin
  • LinkedIn - White Circle

The Rare Advocacy Movement (RAM) is a novel rare disease community-based advocacy network designed to address the issues that affect the real world people of the rare disease community.  RAM is the only community-based Center of Insight and Collaboration Zone offering rare disease stakeholders authentic, comprehensive real world insights, from the source. Each RAM member has made a public vow to always act in the best interest of the rare disease community by abiding by the Code of Conduct for Membership. Those who violate the Code of Conduct for Membership risk removal from the RAM membership and access to the global network via majority vote.