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The Rare Advocacy Movement (RAM) is a group of patient advocacy professionals dedicated to the overall advancement of the rare disease patient advocacy professional ecosystem and landscape. Membership and participation in RAM is subject to the observance of the established Code of Conduct for Membership ("Code of Conduct") and the acceptance of the established and adopted RAM Process Document. All members and affiliates of RAM vow to abide by the established Code of Conduct. Any RAM member or affiliate who may violate the Code of Conduct in parts and/or in its entirety will be subject to immediate removal from the RAM membership and/or affiliation.

Nadia Bodkin, Pharm.D., M.S.
Contact Nadia
Nadia is a seasoned rare disease patient advocate, born with three main rare conditions herself. Immediately after graduation, Nadia went straight into advocacy through EDSers United, a foundation she founded as a student. Nadia has held leadership positions at several rare disease advocacy focused organizations assisting in everything between nonprofit management to event planning. She is currently the Chief Executive Officer for Blaze Therapeutics and is one of the founding members of New Love Ventures. Nadia also founded and currently facilitates the coordination of the Rare Advocacy Movement's activities along with her fellow RAM colleagues. Nadia functions on the premise that she is to make the most of the time that she has left on this earth. With this time, Nadia is determined to make a difference in the lives of those affected by rare conditions, U.S. Veterans, and other like-minded individuals through advocacy and facilitating collaboration amongst all rare disease stakeholders that aim to improve lives.
Follow Nadia on social media @NadiaBodkin
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