Before you apply ...

There are some things that you need to understand ...

RAM Membership will not provide you with an automatic window into current collaborations and initiatives. RAM Membership also doesn't provide you with the ability to shut down an existing collaboration or initiative (unfortunately, we have to say this because ... yes ... others have already tried).

RAM Membership will provide you with the opportunity to connect with other RAM Members, who may (or may not) invite you to participate in an existing collaboration or initiative. No one is obligated to invite you to join their collaboration. If you'd like to be a part of a collaboration, you can start one up yourself! Isn't that exciting? As a RAM Member, you have the opportunity to do that. (10) copy 3.png (4) copy 32.png

RAM Membership does not require you to participate in any collaboration or initiative. The only requirement is to not miss three consecutive voting opportunities in a row. Other than that, you can always choose to be a RAM Member that simply believes in community-based activism, the Code of Conduct for Membership and staying connected to other RAM Members.

Some people (outside of RAM) may try and bully you away from participating in RAM because they are terrified of what RAM stands for ... a unified, educated community of naturally diverse medically complex people. RAM's network has been designed using a novel model establishing a sustainable system of collaboration with no dependency on industry sponsors. RAM has designed its network to allow for stakeholders to benefit from the network's innovative programs, community-based insights, therapeutic industry connections, and Living Rare camaraderie, in a respectful manner that does not exploit patient stories or lived experiences.

When someone gives you an ultimatum, always choose the other thing.


"A win for one is a win for us all ..."