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"OUR  LIVES MATTER"

-A message from RARE DISEASE people of color

A RAM
Membership - Contributor 
Collaboration

Are you or do you care for a rare disease person of color?

If you are a rare disease person of color or you caregive for a rare disease person of color, we might have a job for you! 
 
The Rare Black Lives Matter Too team is currently seeking fellow rare disease people of color to provide honest feedback on their views of rare disease stakeholder websites.
If you are interested in earning some $$$ for your feedback and insights as a rare disease person and/or caregiver/care partner of color, please do not hesitate to contact us so that we may schedule an introductory call to see if you are eligible to participate. 
What is the best way to contact us? 
Glad you asked!
Simply click on the contact us button below or send us an email to team@ourlivesmatter.life. Talk soon!
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Attention Nonprofit Organizations:

Take the Roadmap

for Equity Pledge

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All industry leaders are encouraged to:

Collaborate 

with

US

New Love Ventures

RAM has partnered with New Love Ventures to support the administrative needs of the "Our Lives Matter" DEI (Diversity, Equity, Inclusion) programs.

New Love Ventures, the creator of the New Love Human Culture trademark, is a novel Venture Philanthropy company determined to support initiatives that serve humanitarian efforts, in addition to supporting meaningful distribution of and access to resources, opportunity and the pursuit of happiness for humans of all types.​

New Love Ventures has recently launched the "Our Lives Matter" collection in support of the DEI programs that are dedicated to diversifying clinical trials, the rare disease advocacy environment, and correcting racial healthcare disparities. 

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The Rare Advocacy Movement (RAM) is a patient advocacy initiative focused on documenting the evolving complex ecosystem and unique dynamics of the rare disease patient advocacy landscape. RAM serves as community-based professional network and Center of Insight (COI) for rare disease focused stakeholders. The RAM membership is comprised of a network of patient advocacy community expert professionals that have vowed to abide by the established Code of Conduct for Membership.