Image by Raphael Lovaski

"OUR  LIVES MATTER"

A message from the diverse people of the RARE DISEASE Community

ORGANIZED BY A DEDICATED TEAM OF COMMUNITY-BASED RARE DISEASE ADVOCATES, DEI EXPERTS & ALLY  CONTRIBUTORS
Happy Family
Image by Kelly Sikkema

The Roadmap

for Equity Pledge

Designed for the Nonprofit Advocacy Landscape

Stand Up Meeting

 TAKE 

AUTHENTIC 

ACTION

  • LinkedIn - White Circle

The Rare Advocacy Movement (RAM) is a novel rare disease community-based advocacy network designed to address the issues that affect the real world people of the rare disease community.  RAM is the only community-based Center of Insight and Collaboration Zone offering rare disease stakeholders authentic, comprehensive real world insights, from the source. Each RAM member has made a public vow to always act in the best interest of the rare disease community by abiding by the Code of Conduct for Membership. Those who violate the Code of Conduct for Membership risk removal from the RAM membership and access to the global network via majority vote.