Image by Raphael Lovaski

"OUR  LIVES MATTER"

A message from the diverse people of the RARE DISEASE Community

A RAM COLLABORATION ORGANIZED BY A TEAM OF COMMUNITY-BASED RARE DISEASE ADVOCATES, DEI EXPERTS & ALLY  CONTRIBUTORS
Happy Family
Image by Kelly Sikkema

Attention Nonprofit Organizations:

Take the Roadmap

for Equity Pledge

Stand Up Meeting

 TAKE 

AUTHENTIC 

ACTION

  • LinkedIn - White Circle

The Rare Advocacy Movement (RAM) is a rare disease community-based advocacy initiative focused on addressing the issues that affect the real world people of the rare disease community.  RAM serves as a community-based Center of Insight and Collaboration for rare disease focused stakeholders seeking authentic collaborations and comprehensive community insights. Each current RAM member has made a public vow to always act in the best interests of the rare disease community through the adopted Code of Conduct for Membership or risk being removed from the RAM membership and network.