Amber Freed

Amber Freed currently serves as SLC6A1 Connect’s Founder and Chief Executive Officer. Amber’s son, Maxwell, was diagnosed with the neurological disease SLC6A1 (GAT1) at a year old. Prior to Founding SLC6A1 Connect, Mrs. Freed served in a variety of equity and financial analysis roles, most recently in equity research with Janus Henderson Investors. She brings 15+ years of equity analysis, capital markets, valuation and corporate strategy to her non-profit role to advance curative approaches for SLC6A1. Mrs. Freed attended the University of Denver on an academic scholarship for both undergraduate and graduate school. She was also featured in the top selling book, ​Shortcut to Prosperity​. Amber was nominated for the Global Genes 2019 RARE Champion of Hope Award. She also sits on the board for CombinedBrain and Rare Village.

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Areas of Advocacy Expertise:

  • Nonprofit Organization

  • Pharmaceutical Partnerships

  • Gene Therapies

  • Social Media & Marketing

  • Structuring Academic Contracts

  • Assessing Contract Research Organizations

  • FDA Meetings

  • Whitepaper Development

  • Public Speaking

  • Symposium Planning

  • LinkedIn - White Circle

The Rare Advocacy Movement (RAM) is a patient advocacy initiative focused on documenting the evolving complex structure and unique dynamics of the rare disease patient advocacy landscape. RAM serves as a Center of Insight (COI) for those interested in participating in collaborative patient advocacy initiatives and working groups within the rare disease industry. The RAM membership is comprised of a network of patient advocacy professionals that have vowed to abide by the established Code of Conduct for Membership.