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LIVING RARE EDITORIALS

Jessica Wong

Helping People Diagnosed with a Rare Disease Overcome Mental Health Challenges

Mental health challenges affect people of all ages, including children and teenagers...

Neuromuscular Disease Foundation

Accessibility

Where are we still falling short? Where can accommodations for disabled persons be improved? November 18, 2022 “Staff were huffing and...

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Dysautonomia and Gastroparesis

Gastroparesis is a condition caused by the slowed or stopped movement or contraction of your stomach muscles...

The Propionic Acidemia Foundation (PAF)

The Care Notebook: An important tool for individuals, their families, caregivers, and medical team

October 26, 2022 Those with rare and complex disorders and their caregivers hold a crucial role in their care team. They often have to...

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

Thermoregulation Issues in Dysautonomia

October 24, 2022 - Written By: Maria Arini Lopez, PT, DPT Symptoms of dysautonomia are caused due to dysfunction within the autonomic...

Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT

POTS: What is It?

POTS is one of the many possible symptoms of dysautonomia, a disorder affecting the autonomic nervous system (ANS).