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Circular Library

Collaboration
archive

Understanding eds

Two hEDS research studies

Image by Sean Sinclair

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Everyone is RARE

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A RAM Membership - Contributor Collaboration

Everyone is RARE


The Butterfly Collaboration
A RAM - Curant Health Collaboration

The Butterfly Collaboration

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Collaborate

for

Rare Lives 

A RAM Membership Collaboration

Collaborate for Rare Lives
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Let's Face This Together!

A RAM - Same But Different Collaboration

Free Masks for Kiddos
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MISSING ENDPOINTS
A RAM - ThinkGen Collaboration

Missing Endpoints

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Understanding the Patient Advocacy Group (PAG) Perspective

A RAM Collaboration

Connecting Industry with Community

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Support Beyond Therapeutic Products

A RAM Membership Collaboration

Support Beyond Therapeutic Products
Current RAM Collaborations

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The Rare Advocacy Movement (RAM) is the first sustainable rare disease community-based network designed to unite and empower people with lived rare disease experiences.  RAM is dedicated to protecting the fair market value of the community's perspectives, insights and experiences (PIE). All RAM members vow to always act in the best interest of the global rare disease community by abiding by the Code of Conduct for Membership. Violations of the Code of Conduct for Membership shall result in resignation from the RAM membership via majority vote. For those not yet ready for RAM Membership, partnerships and trusted stakeholder options are available through Rare360.

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© Copyright 2017-2026. Rare Love Ventures. All rights reserved in partnership through RARE360.

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© 2017- 2022. Rare Advocacy Movement. All rights reserved in partnership through Rare360 by Rare Love Ventures.  

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