Neuromuscular Disease Foundation
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Where are we still falling short? Where can accommodations for disabled persons be improved? November 18, 2022 “Staff were huffing and...
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LIVING RARE
Perspectives, Insights & Experiences (PIE)
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Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Oct 31, 20223 min
Dysautonomia and Gastroparesis
Gastroparesis is a condition caused by the slowed or stopped movement or contraction of your stomach muscles...
The Propionic Acidemia Foundation (PAF)
Oct 26, 20224 min
The Care Notebook: An important tool for individuals, their families, caregivers, and medical team
October 26, 2022 Those with rare and complex disorders and their caregivers hold a crucial role in their care team. They often have to...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Oct 24, 20222 min
Thermoregulation Issues in Dysautonomia
October 24, 2022 - Written By: Maria Arini Lopez, PT, DPT Symptoms of dysautonomia are caused due to dysfunction within the autonomic...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Oct 17, 20224 min
POTS: What is It?
POTS is one of the many possible symptoms of dysautonomia, a disorder affecting the autonomic nervous system (ANS).
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Oct 10, 20222 min
Dysautonomia: What is It?
October is Dysautonomia Awareness Month, so my blogs for this month will focus on difference symptoms of and supportive treatments for ...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Sep 30, 20223 min
Save Your Spoons!
An Energy Conservation Strategy for People Living with Chronic Illnesses
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Sep 20, 20224 min
Pressure Headaches
CSF surrounds the brain and spinal cord and is contained within the meninges...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Sep 12, 20224 min
Why Does Pain Increase with Weather Changes?
September 12, 2022 - Written By: Maria Arini Lopez, PT, DPT Do you ever feel that your joints, bones, muscles, and/or head start to...
Aston Martinez
Aug 19, 20225 min
The Impact of Healthcare Pricing & Transparency on the Rare Disease Community
Imagine this: you’ve just arrived back home from running errands and decide to check the mail, whereupon you find that you’ve received an ou
Neuromuscular Disease Foundation
Jul 25, 20224 min
Media Messaging on Inter-abled Relationships: What Are We Saying to The Disabled Community?
The trending Netflix show “Love on The Spectrum” features Autistic twenty-somethings who are navigating the dating world in search of ...
Aston Martinez
Jul 21, 20229 min
The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace
The Specious Reason Behind the Lack of Diversity, Equity, and Inclusion Training in the Workplace
Aston Martinez
Jun 27, 20225 min
The Disability Spectrum & Why It Matters
The Disability Spectrum & Why It Matters
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