Neuromuscular Disease Foundation
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Where are we still falling short? Where can accommodations for disabled persons be improved? November 18, 2022 “Staff were huffing and...
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LIVING RARE
Perspectives, Insights & Experiences (PIE)
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Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Oct 24, 20222 min
Thermoregulation Issues in Dysautonomia
October 24, 2022 - Written By: Maria Arini Lopez, PT, DPT Symptoms of dysautonomia are caused due to dysfunction within the autonomic...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Oct 17, 20224 min
POTS: What is It?
POTS is one of the many possible symptoms of dysautonomia, a disorder affecting the autonomic nervous system (ANS).
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Oct 10, 20222 min
Dysautonomia: What is It?
October is Dysautonomia Awareness Month, so my blogs for this month will focus on difference symptoms of and supportive treatments for ...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Sep 30, 20223 min
Save Your Spoons!
An Energy Conservation Strategy for People Living with Chronic Illnesses
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Sep 21, 20222 min
High Pressure Headaches
What is the difference between low pressure headaches and high pressure headaches?
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Sep 12, 20224 min
Why Does Pain Increase with Weather Changes?
September 12, 2022 - Written By: Maria Arini Lopez, PT, DPT Do you ever feel that your joints, bones, muscles, and/or head start to...
Neuromuscular Disease Foundation
Jul 25, 20224 min
Media Messaging on Inter-abled Relationships: What Are We Saying to The Disabled Community?
The trending Netflix show “Love on The Spectrum” features Autistic twenty-somethings who are navigating the dating world in search of ...
Aston Martinez
Jun 27, 20225 min
The Disability Spectrum & Why It Matters
The Disability Spectrum & Why It Matters
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Jun 17, 20224 min
Tension-Type Headaches
Headaches can be debilitating, making focus and concentration at school or work incredibly difficult. They are one of the top health reasons
Neuromuscular Disease Foundation
Jun 2, 20224 min
Consciously Shifting the Dynamic of Patient Storytelling
The Neuromuscular Disease Foundation and RAM Challenge You to Change the Way You Tell Patients’ Stories
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
May 27, 20226 min
Applying for Jobs with a Disability
May 27, 2022 - Written By: Maria Arini Lopez, PT, DPT Under the best of circumstances, applying for a new job is stressful and...
Aston Martinez
May 24, 20228 min
The Harms of Being Labeled a ‘Difficult’ Patient
The Harms of Being Labeled a ‘Difficult’ Patient
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
May 20, 20226 min
Where the Body and Mind Intersect
How does a rare disease diagnosis, chronic illness, or disability affect a person's mental health?
Aston Martinez
May 16, 20225 min
Are Mobile Healthcare Apps Jeopardizing Your Privacy?
For many people, it doesn’t come as much of a surprise that any online technology carries massive risks to our privacy...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
May 13, 20223 min
What are Expanded Access Programs?
What happens when you can't participate in a clinical trial for whatever reason? Expanded Access happens...
Aston Martinez
May 9, 20227 min
Dating & Healthy Relationships for People with Disabilities
Many people mistakenly believe that people with disabilities don’t desire sex and relationships, or that they are entirely unable to do so.
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
May 6, 20225 min
Trigger Points: What are They and How Do They Contribute to Pain?
Have you ever had a massage where the therapist found an especially tender area in the muscle that felt like a knot?
Aston Martinez
May 2, 20228 min
Value Your Rare
As members of the rare disease community, it's easy to feel isolated, unheard, invisible and exploited...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Apr 29, 20223 min
Human Genome Now Practically Fully Sequenced: What does this mean for the Rare Disease Community?
This genome sequence will undoubtedly serve as a firm foundation for the development of effective treatments and potential cures for over 56
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Apr 15, 20224 min
Dry Eye Can Contribute to Fatigue 🥱
About 3 years ago, I went to my eye doctor for a routine exam. She asked me if I had any concerning symptoms that had started since our ...
Maria Arini Lopez, PT, DPT, CSCS, CIMT, CMTPT
Apr 8, 20226 min
Tips and Tricks to Improve your Sleep 😴
It is a vicious cycle—experiencing complete and utter exhaustion every waking hour of the day, yet when you crawl into bed at night...
Olha Urys
Mar 25, 20227 min
Tragedy and Hope: the Voices of the Living Rare Community in Ukraine 🇺🇦
The morning of February 24th has changed the life of every Ukrainian forever.
"Our Lives Matter"
Feb 28, 20215 min
"We CARE About Rare Lives"
"We CARE About Rare Lives" is the community-focused response to the "Our Lives Matter" global rare disease call-to-action.
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