"Our Lives Matter"Jan 25, 202111 minDiversity, Equity, Inclusion (DEI)In response to the RARE-X DEIP AnnouncementAn important message on behalf of the rare disease community of color written by the “Our Lives Matter” Diversity, Equity, Inclusion (OLM DE
Adults Living RareDec 15, 20205 minAdults Living RareGreat news for Rett syndrome and other similar rare diseases on the autism spectrum After receiving the disappointing news that GW Pharmaceuticals has made the difficult decision to discontinue their cannabidiol study in mid
Adults Living RareMar 5, 20201 minAdults Living RareThe first Community-based stakeholder collaboration zoneThis event will be hosting the very first Community-Based Collaboration Zone, a two hour event curated by the Rare Advocacy Movement.